64 Andalusian households are unsure whether or not their kids can have a faculty nurse | News from Andalusia | EUROtoday

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Dylan is six years outdated. He has discovered to learn and write at residence because of instructional packages on the Internet. Last yr he solely attended his college in La Línea de la Concepción (Cádiz) for in the future, however when the Nursing Assistant (TCAE) who had been assigned to him beneath a protocol of the Junta de Andalucía to take care of the education of minors with advanced continual diseases famous the kind of care he required, he warned that he wouldn’t be capable of handle the kid. Dylan has a uncommon illness that causes muscle paralysis and requires a respirator. “Without continuous support and without someone with specialized training, it is impossible for my son to go to school,” explains his mom, Nazaret Campos, who’s in command of educating her son at residence.

She is among the 64 households that has launched a marketing campaign to make sure that the Andalusian Government complies with the protocol signed in September 2023 between the Ministry of Health and the Ministry of Educational Development to supply particular well being care inside instructional facilities to kids who are suffering from advanced continual illnesses or who’re in a state of affairs of palliative care. This is a service offered by the Technical Personnel for Social Integration (PTIS). or the TCAE, beneath the supervision of the varsity nurses, and in particular circumstances additionally nurses who attend to their therapeutic wants and particular care, thus guaranteeing their regular education. A service that has been utilized late this yr and has not been developed as deliberate, in keeping with the households who’ve had this assist, and its provision this yr is determined by the renewal of the protocol from September 1 and have to be requested from September, with the varsity yr underway. They demand that they’ll request the varsity nurse now, which is when registrations are made, to start out subsequent yr with the assure that they’ll have one.

“We have been told that the protocol ends on August 31 and that it is reactivated on September 1. This means that the educational guidance professionals who must certify that the child needs this care have to do all the reports again, and that with the school year already started means losing time that is precious to us,” explains Alejandro Tagua, father of Leo, a six-year-old boy who has been in an everyday classroom at a faculty in Aljarafe, Seville, since he was three years outdated and whose neuromuscular illness forces him to feed himself by way of a gastric button. His son shouldn’t be a kind of who has benefited from the protocol. “All these years we have tried to have one of the PTIS keep an eye on his secretions to aspirate him and feed him, but that is complicated because there are 22 other children in his class, and at the centre there are more students with other special needs and there are only two PTIS, so Leo receives the right amount of attention, diaper changes and little else,” he explains.

The protocol was signed to care for youngsters in palliative care conditions, who want ventilatory assist throughout college hours or who are suffering from butterfly pores and skin illness. 90% are enrolled in main college. “These are children with very serious illnesses, but who do not need a specific classroom or special education, many do not have their cognitive capacity affected, but rather have mobility or respiratory problems, and in cases of cerebral palsy, social integration in the classroom is essential, but always with the care of a nurse,” says Araceli Quintero, member of AMECE in Andalusia, the National and International Association of School Nursing.

Quintero defends the significance of those providers being offered by a faculty nurse as a result of neither the PTIS, who don’t have particular coaching within the very particular care that these kids want – and in lots of circumstances, they themselves or the businesses that subcontract them warn that this isn’t their job, nor can they cope with it solely as a result of they’re in command of different college students with particular wants – nor the TCAE, whose capabilities additionally don’t embody lots of the methods that they need to apply, can cope with them with ensures. “These minors need very specific techniques, not everyone can handle a flash system to monitor glucose, aspirate secretions…”, she signifies. This lack of coaching is what led the TCAE who had been assigned to Dylan at his college to resign, forcing his mom to go for residence education him.

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Need for particular coaching

It is the Department of Educational Development that transfers to the Department of Health, by way of a platform, the scholars who might require this care and as soon as the request is obtained, it’s the latter division that prepares a selected report of care based mostly on the precise pathologies which can be transferred to the TCAE or to the nurse employed by Educational Development. This division detected 64 households that might obtain this care, however, in keeping with the presentation made by the Minister of Health, Catalina García, in parliamentary headquarters this yr, the protocol was utilized to fifteen minors. Only 15 kids have obtained this service.

In addition, this yr a pilot program has been activated for 5 particular circumstances through which minors have obtained the care of a nurse and a TCAE. This is the case of Máximo, the son of Anabel Ballesteros, one of many pioneering moms within the struggle to demand particular care in faculties from the Regional Government. “This care from a nurse and a technician should not be something exceptional, but rather it is a service that all children in this situation should have, because an assistant cannot give medication to children, but a nurse is not the one who has to change their diapers,” explains Ballesteros, a health care provider by occupation.

Her expertise has not been optimistic. Ballesteros says that the nurse assigned to her son's college in Malaga didn’t have any of the required supplies to take care of Máximo, who suffers from the identical sickness as Leo, though in his case he doesn’t want a gastric button to eat – “even so, he can choke while eating and not just anyone can feed him,” she explains. “I had to give him all the materials he needed and the assistant did not even know what she was getting into,” she says. Due to the SAS's month-to-month contracting system, when the assigned nurse didn’t renew her contract, nobody else confirmed up on the college. “In my case, I did not appeal the appeal, because it was not helping me at all and, in addition, it is not well received at the school that there are too many adults in a classroom: the teacher, a PTIS, an assistant and a nurse,” she says. But there may be one other extra essential cause: “If the nurse or the assistant falls ill or is on sick leave or cannot attend the centre, as there are no replacements, they warn you that you cannot take the child because there is no one to take care of him,” she explains.

This is an added drawback for these households who’re carers 24 hours a day and who, even once they drop their kids off at college, many keep ready on the doorways or don’t go far, as a result of they’re ready on the telephone in case one thing has occurred. “When your phone rings, in our case it is not because the child has misbehaved, it is because they may be taking him to the emergency room because he is dying,” says Ballesteros. Due to their state of affairs and since they want different care, these kids can not go to highschool on daily basis. “Many go on alternate days, others get exhausted and we have to pick them up halfway through the day…” says Máximo’s mom. In Leo’s case, if he catches a chilly he will be unable to return to highschool for nearly three months.

The 64 households initially recognized by the Department of Education demand that the protocol be activated for all of them and with all assets, not solely PTIS or assistants, but additionally college nurses, as within the pilot circumstances. They additionally ask to not have to attend for the protocol to be reactivated on September 1, so as to have the ability to begin the following college yr with the assure of getting important assist in order that their kids can lead “a normal life” throughout the college. The president of the Board, Juan Manuel Moreno, attended to a number of of its representatives throughout a go to they made to Parliament to make their state of affairs seen, however nothing has modified. “In addition to good words, we need realities,” says Ballesteros.

School nurses should not a luxurious

Araceli Quintero, a member of the Andalusian National and International Association of School Nursing AMECE, warns of one other drawback associated to highschool nurses on this neighborhood: “A priori, the nurses trained to attend to these very specific needs are pediatric or community nurses, a specialty that does not exist in the Andalusian Health Service pool.” Quintero additionally requires the presence of those professionals in faculties on a everlasting foundation, not solely restricted to the education protocol for minors with advanced continual illnesses. “The nurses in charge are in the health center and coordinate with the educational centers in the area, but they are not in the schools; their presence is essential to prevent diseases and relieve congestion in primary care, but it is another pending issue,” she emphasizes. Right now this service is simply supplied by personal or backed faculties they usually achieve this as a luxurious, when it’s an important want.

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