Advancement for dependable and accessible well being data | EUROtoday

On May 26, 2025

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ILYA greater than ten years, we alerted to the necessity to coordinate and construction well being data by calling for the creation of a single, accessible and dependable public portal. Since then, some advances have emerged, such because the implementation of the Santé.fr web site, carried by the Ministry of Health. But this initiative, which is essentially inadequate, stays an embryo of what an actual public well being data service may grow to be.

The gaps in our public data system had been highlighted through the COVVI-19 well being disaster. If the dependable data does exist, it stays fragmented, not very harmonized, unclean, tough to entry and poorly referenced. The normal public, like well being professionals, typically finds himself helpless within the face of inflow of data, unable to differentiate rigorous information from manipulated speeches. Added to that is the complexity inherent in scientific uncertainty – and an growing mistrust of establishments.

Read too The p^RRaoult suspended (too late) by the order of docsFaced with this void, disinformation affluent. It is now organized, professionalized, and infrequently piloted for ideological, political, monetary, even societal destabilization. It skillfully exploits the low well being training degree of a part of the inhabitants and the virality of digital networks.

During a latest convention on disinformation, the Minister accountable for well being and entry to care spoke in regards to the labeling of dependable websites. If this initiative begins from a commendable intention, it has already been skilled up to now with out convincing success. The label considerations the container and can’t validate the content material.

The time has come to create a secure data portal

We name to go additional: it’s time to create an built-in portal of data and well being coaching, questionable in on a regular basis language, integrating a synthetic intelligence able to aggregating, prioritizing, contextualizing and making content material from varied sources accessible. This portal ought to be based mostly on a constitution of transparency, impartiality, objectivity, relevance, rigorous administration of hyperlinks. His governance ought to be based mostly on a pluralist editorial committee, and on an unbiased scientific council accountable for validating content material, sheltered from any strain.
We are lucky to have, in France, a wealthy ecosystem of high quality data producers: universities, realized firms, buildings and public networks, specialised journalists, associations, actors concerned within the verification of information … This pool of abilities deserves higher visibility, enhanced coordination and a synergy of volunteers round a typical undertaking.

Strengthen well being democracy

This portal, which may represent one of many pillars of the Observatory of Health Disinformation desired by the Minister, ought to be positioned beneath the aegis of an unbiased authority, and able to producing or producing reactive and dependable content material, in reference to public well being wants and the considerations of residents. It may very well be hooked up to a reactive training and coaching platform, supposed for residents in addition to well being professionals, to be able to strengthen the extent of well being training and supply concrete instruments in disaster to entrance line actors.

Read too “If the covid returned, we would still not be ready” The creation of an built-in well being data portal is a strategic requirement and emergency to successfully fight manipulation of data, strengthen well being democracy and construct a extra resilient society within the face of future well being crises.

*P^R Mathieu Molimard, Honorary President of the National College of Medical Pharmacology, Head of the Pharmacology Service of the Bordeaux University Hospital

*P^R Bernard Bégaud, honorary president of the University of Bordeaux

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The kangaroo of the day

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*Dominique Costagliola, member of the Academy of Sciences, Director of Research Emeritity at INSERM

*D^R Hervé Maisonneuve, public well being physician, former president of the European affiliation of scientific editors

https://www.lepoint.fr/sante/plaidoirie-pour-une-information-sante-fiable-et-accessible-26-05-2025-2590504_40.php